Hi! Today was another productive
day for Dwight. He swallowed four out of six times on command!!
He kept EXCELLENT eye contact with the therapist as well as
tracking the spoon the entire 30 minutes. He also held the spoon
and put it to his mouth. He had the 'cap' on the trach the entire
time and wasn't phased by it at all. He breathes through his
nose since the Jackson Trach.(whereas before the Jackson his
only means of breathing was through the trach)
His OT/PT combo class went
very well. When they had him leaning on his left elbow and went
to stretch the right arm over his head he grimmaced
The EMG is currently scheduled for 1 pm tomorrow. Please pray
it is only a torn rotator cuff ... BUT God KNOWS BEST!!!! He
'high fived' the PT three different times today as well. The
substitute OT had him pick colored squares that were placed on
pegs ... after she explained how some had one hole and some two
and some three and some four and some five he picked them up,
examined them and put them back on the pegs. He also was right
80% of the time with picking the color requested as well!!
In his afternoon ST session,
they had two squeak toys and she gave one to Dwight and held
one. She squeaked hers three times and told Dwight it was his
turn ... meaning to squeak his. WELL ... he squeaked it THREE
TIMES!!! SOOOOO she randomly did it 1-4 and he did it EXACTLY
as many squeaks as she. She did it five squeaks and he hesitated
and then just squeaked squeaked squeaked it ... he knew it was
a lot and so a lot she got! This was funny!!
We had company from TWR and
their two children had colored "Mr. Dwight" some pictures.
They held them out to him as they said "Hello Mr. Dwight"
He reached out and took Kristy's, looked at it and then without
laying it down he reached out and with two different fingers
took Drew's picture, looked at it and laid them both in his lap!!!!!
This was SO COOL!!!!! Also, while Steve was talking to him,
Dwight reached down, untied the bow, untied the knot, loosened
the first two row of laces and took his right foot and pulled
off his shoe!!!! It was SO methodical and he KNEW what he was
doing!!!!!!!!!
One other thing .... Jim Sloan
and Nancy Wren ... y'all will be proud!! He was laying down
and wide awake so I had read some scripture with him and prayed
with him and he was messing with his right hand, the blanket
and what not. So I did the 'signing' (language of the deaf)
symbol for 'love' ... he wouldn't copy it so I took his left
hand, bent his fingers and extended the thumb and other two fingers
and held his hand up. I go, "I love you Dwight' ... he
proceeded to relax his hand and put it under his blanket. Soooo
I did the symbol again and told him 'I love you Dwight' and out
from the blanket comes the I LOVE YOU SYMBOL!!!!!!!!!!!!!!!!!!!!!!
He did it a second time too !!!!! Is this FANTASTIC or what?????????????????
Made this ol' mama cry!!!!
Anyway, yes today was definitely
a cloud nine high. Sort of balances the ground hog hole day
of Saturday. I know there will be other "low" days
and the ground hog in his hole will be higher than I will be
BUT GOD!!!!!!!!!!!!!!!!!!!!!!!!! I have exclaimed to the PT
before that the 'little' things are so BIG to me .... and she
very compassionately says, "they're big to ALL of us Joan"
....... May God find us faithful! joan for us 4
1 Cor 2:5 ...."so that
'our' faith would not rest on the wisdom of men, but on the POWER
OF GOD".......