Subject: Hello!
YAWN!! I was too sleepy last night to get out an update ...
sorry!
It was another good day. He is more alert and focused every
day. He was downsided to a '4' trach and if all goes well this
weekend, it comes out completely on Monday!!!! HOORAY!!!! His
lungs are staying perfectly clear. They did another chest xray
yesterday to check on the fluid around the lungs. Will pass
on the results when I know them.
He is following directions well. He swallowed 9 out of 14
times on command yesterday. He is so much less adgitated and
the 'mitt' stays off more than on. Every now and then when he
is frustrated or had enough of something (speech class for one)
he'll grab hair or wrists or something. Last evening the BA
used a yes/no paper for him to mark if he wanted to go outside
or not. Once they came inside, MOM did it .... he communicated
WELL with me on the yes no. For instance I was reading scripture
to him and asked him if he'd like something else read and he
opened and stopped at Psalms 107. After reading it I asked if
there was anything else ... he was looking at the words and was
first closing his left eye and then the right. I asked if he
could see out of each eye and he pointed yes. (Hallelujah!)
I suspect that perhaps there is double vision in the right eye
as when he and I went outside I noticed him closing first one
and then the other eye. I also asked if his should was in pain
and he pointed yes. I wrote a 1-2-3 and told him one was it hurt
only a little, two was it hurt so-so and three it hurts a lot
... what level does it hurt and he pointed to the two. He would
not point at either when I asked him if he wanted the nurse to
give him some tylenol. The NEAT NEAT thing is that I went out
on a limb and gave him a pen and asked him if he'd write his
name ..................... HE DID!!!!!!!!!!!!!!!! (He is right
handed and this was with his left hand!) It was AWESOME to
watch him write Dwight and then Witherington sort of was jumbled
but he is like his father in that when they sign their name you
can read about the first five letters of the last name and have
to guess at the rest!!!
I
met his speech therapist on the way outside and she actually
teared up when I told her he wrote his name and she is MOST anxious
for this mornings speech session. He is coming around more and
more every day. He is beginning to sleep through the night on
a regular basis which is direct answer to prayer. Every day
is a new adventure and we look for great things FROM GOD!!!
I am holding off on moving into the family apartments as right
now all that is available for what I need is in the OLD building
and, well .... let's say I looked at it and the LESS time I have
to live in this OLD, smelley place the better!!! SO right now
we will remain here at the Barkers. Right now they are due to
close on the townhouse the 25th of this month. By then perhaps
there will be something available in the new building. IF not
... THEN and only then will I 'make do'......
Thanx again for praying!! May God find us faithful!!!! joan
for us 4
1 Cor 2:5 "....so that "our" faith
would not rest on the wisdom of men, but on the POWER OF GOD"!!!!